Previous research on perception of kidney patients
Over the past three years, Artevelde University College has been conducting research together with Ghent University, AZ Sint-Lucas Gent, UZ Gent, AZ Sint-Elisabeth Zottegem and AZ Glorieux Ronse into the experience of older (65+) and vulnerable hemodialysis patients for whom dialysis is often permanent. is.
Impact of kidney dialysis on daily life
Do your patients often indicate that the impact of kidney dialysis on their day-to-day life is great? Larger than they could have estimated in advance? That they feel tired, experience a lack of time? That they don't get around to meaningful activities? And that they need appropriate information and support at the right time to fit dialysis into their daily lives?
75% of dialysis patients are 65 years or older. Patients receiving dialysis are extensively monitored from a medical and nursing point of view and well informed about and during their treatment. While the impact of dialysis on the patients' daily lives is great, they indicate that they receive too little information to be able to estimate that impact.
They have no idea in advance what their daily life will look like. Dialysis is time consuming, tiring and exhausting, leaving little quality time for essential and meaningful activities. Nevertheless, meaningful, daily activities have a major impact on the quality of life of people with a chronic condition.
Tailor-made advice about incorporating dialysis into daily life
They believe that more attention to advice on how to fit dialysis into their daily lives would be very useful. A first step can be to provide correct and accurate information when it is needed. A brochure is not always of much use to them because it does not respond to the specific needs at a certain moment. So what can help them forward?
Smart technology support
In the current research project at Artevelde University College, we want to find solutions in co-creation with patients and their entourage so that they can receive personalized information when they need it. In this phase of our research we explore technological possibilities. Could we help the patients and their entourage via smartphone, tablet or computer? Imagine if they could ask their questions to a voice assistant: "Siri, what should I do?" Can you help me with…”
Would you like more information about the project or would you like to be informed of the results? Contact the researchers!
Infographic with first results
Partners
BIANCA, your assistant in living with a chronic condition
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Research realisations and publications
Presentation
Preliminary study results: lessons from the daily life of a dialysis patient.
Article
March 10 is World Kidney Day: bridge the knowledge gap to better kidney care!
Bachelor's thesis
How do patients experience their kidney transplant? An observational qualitative study.
Bachelor's thesis
Meaningful activities after a kidney transplant: a qualitative study using in-depth interviews.
Bachelor's thesis
A qualitative study of limitations in activities in dialysis patients.
Bachelor's thesis
Self-reliance of hemodialysis patients: cross-sectional study of activities of daily living.
Bachelor's thesis
What quality of life do older patients with chronic renal failure on hemodialysis experience?
Master's thesis
How do family and carers experience the kidney dialysis of their loved ones? A qualitative exploratory study.
Master's thesis
The elderly renal dialysis patient and his/her perceived impact of the treatment on daily functioning.
Master's thesis
The relationship between the quality of life of hemodialysis patients and personal, activity and environmental factors.
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